Archive for the ‘Uncategorized’ Category

Crippen discovers that 6 out of 10 people who have died from COVID-19 are disabled

Mehrunisha Suleman, Senior Research Fellow at the Health Foundation has responded to the latest statistics on Covid related deaths from the Office of National Statistics’ (ONS).

She said: “COVID-19 has had an unequal impact on disabled people who have been among the hardest hit in terms of deaths from the virus. Worryingly, ONS’ data confirms this trend, showing that 6 out of 10 people who have died with COVID-19 are disabled”. 

She added: “(These) figures clearly show that current measures to protect disabled people are not enough and that there is an urgent need for more and better support. Disabled people are more likely to have one or more long-term health conditions, which means they are at greater risk of suffering severe symptoms if they get COVID-19”.

Ms Suleman also spoke of how, due to lockdown, disabled people’s health care needs are not being fully met and that they have had treatment either cancelled or delayed. She said:

“The high number of COVID-19 deaths among disabled people ultimately reflects wider failures in how the UK supports those who are vulnerable. Addressing this will require the government to address the major and long-standing inequalities that the pandemic has highlighted.’

Further data from the ONS has shown that some 30,296 of the 50,888 deaths recorded for the ten months between January and November 2020 were disabled people.

The ONS also stated that an “important part” of the increased risk was because disabled people were “disproportionately exposed to a range of generally disadvantageous circumstances” compared with non-disabled people.

In other words, unless the government starts to give serious consideration to providing a level playing field for disabled people, it doesn’t say much for our chances of surviving another wave of the Covid virus does it?

Perhaps the first thing to do would be to replace their miserable excuse for the Minister for disabled people, Justin Tomlinson, with someone who has personally experienced the many barriers we face on a daily basis … a disabled person perhaps?!

Description of cartoon for those using screen reading software

Boris Johnson is standing facing the grim reaper who is clad in his usual black, hooded cloak and carrying his scythe. The cloak has covid printed in white at the bottom and on the ground in front of him is a notice that says ‘Covid 19 – 6 out of 10 deaths are disabled people’. Behind Boris is Justin Tomlinson who stands with his thumb raised in the air and with a sycophantic smile upon his face.  Tomlinson is carrying a card which reads ‘no plans developed to protect disabled from covid’. Boris is smiling at the Reaper and is saying to him: “So the deal is – we continue to supply you with disabled people and you leave the rest of us alone?!”

Crippen and further delays to the publication of the government’s disability strategy.

I think that we can safely say that we are now into summer and that the cross-government disability strategy which was to be published early in the Spring hasn’t yet happened.

But don’t worry, the so called Minister for Disabled People Justin Tomlinson has told MPs on the work and pensions select committee that it would “possibly, probably” be published … er, maybe before the summer recess in July?

He also thought that the health and disability green paper which would include changes to disability benefit assessments, the Access to Work system, and benefit sanctions, might also be published at the same time … er, maybe.

Talk about dithering. Just how does this excuse for a Minister keep hold of his job? Although, as far as this Tory government is concerned, he’s doing an excellent job, procrastinating and delaying any meaningful dialogue that would ensure any future for disabled people in this country.

I was going to include some of his comments about various aspects of the green paper, but I found myself losing the will to live when I heard what he had to say to his fellow MPs about the caring and sharing Department of Works and Pensions (DWP).

Surely he was being ironic when he told them that the DWP would be “absolutely on top of (their) game in identifying potentially vulnerable claimants”. No doubt like they were with the thousands of disabled claimants who have died during their draconian assessment process?

No, I can’t stomach any more … but if you feel up to reading more about the utter drivel he’s been spouting about this caring Tory government, and how they are going to completely change the way they treat us, Disability News Service have provided a full account for you.

Description of cartoon for those using screen reading software

Minister for disabled people, Justin Tomlinson is standing next to a display on the wall. The display heading says ‘new DWP logo’ underneath which is a large red heart with ‘caring 4 you – DWP’ printed in white upon it. He is holding a piece of green paper with ‘gov green paper’ printed upon it and is pointing at the display with his other hand. He is looking at you, the audience and is saying: “It was designed by Iain Duncan Smith – what do you think?!”

Crippen hears about four Tory peers who launch a blistering attack on disabled colleagues

At the same time that the government prepares to publish its cross-government national disability strategy, which disability minister Justin Tomlinson has claimed will “remove barriers and make this country more inclusive for disabled people”, four Tory peers have launched a blistering attack on their disabled colleagues.

The Tory peers were all arguing that the Lords should quickly return to “normal” and the adjustments that have allowed disabled members to vote and take part in debates from their homes during the pandemic should end.

Lord Farmer, a former treasurer of the Conservative party argued that “personal infirmity should not provide grounds for exemption from normality” and that continuing the adjustments post-pandemic would be “extending the logic of equality beyond reason”.

He said that “for the sake of the public who are paying our way, personal infirmity should not provide grounds for exemption from normality” and that “parliamentary participation is for those able to bring vitality to proceedings. The previous norm should be reinstated: those of us who cannot come to the House cannot contribute.”

His colleague, Lord Howard of Rising, called for the Lords to “resume our usual proceedings at the earliest possible opportunity” and said it was “inconceivable that those who aspire to take part in the governing of this nation should not make the effort to attend parliament, whatever the difficulties”.

Baroness Noakes called for the Lords to “get back to normal as soon as possible” and that there were “no good reasons for hybridity in future … those who are ill or otherwise unable to attend for periods of time can take leave of absence … or retire instead.”

A fourth Tory peer, Viscount Trenchard, made it clear that he did not believe that “those with disabilities, in poor health or pregnant should be allowed to continue to participate remotely”.

The adjustments introduced by the authorities in the House of Lords have allowed disabled peers such as Baroness [Jane] Campbell and Baroness [Sal] Brinton – who have both had to shield from the virus – to continue to play an important part in parliamentary proceedings during the pandemic.

However, not all Peers agreed with the disablist attitude of the Tory members.  The Liberal Democrat leader in the Lords, Lord Newby, said there was “a strong case for allowing those who have a disability that makes attending the House difficult to retain the option to participate virtually on a permanent basis”.

Baroness Campbell, a crossbench peer, told Disability News Service that the “capacity to join in remotely has swept away many of the barriers that some of us encounter daily” and she called for the “best aspects” of the hybrid model to be retained post-pandemic.

She said it had been “a relief to watch debates at home on my night-time ventilator and to vote. It improved my focus, decision-making and health. As a result, I worked harder, longer and more effectively than ever I had done before the pandemic.”

After the debate, Baroness Brinton, the Liberal Democrat health and social care spokesperson in the Lords, who has been working from home for the last 14 months to allow her to shield, described the comments of the Tory peers as “an extraordinary barrage of attack on disabled peers and those with underlying conditions … our ‘infirmity’ or ‘unsound body or mind’ meant that (if) we couldn’t attend the House of Lords, we weren’t worthy of our place in it.”

If I remember rightly, it’s these same peers who felt it was more important to put the clerks to the Lords back in their horsehair wigs. Says it all really!

Description of cartoon for those using screen reading software

Baroness Jane Campbell is sat in her wheelchair facing three Tory Peers. They each look ridiculous in their own way – one wearing a top hat and a monocle, another wearing a horsehair wig and a woman looking down her nose. Both Jane and the other Peers are also wearing their red and white fur trimmed ceremonial dress. The Lord with the top hat is saying to Jane: “You’re better off leaving it to those of us who are normal m’dear!”

Crippen hears about legal action over government’s ‘excessive and discriminatory’ care home rules

Disabled activist Doug Paulley strikes again, this time threatening legal action against government COVID rules that force residents of care homes to isolate for two weeks every time they attend a medical appointment or visit a shop, a hospital, or any other indoor settings.

Despite the government announcing that care home residents can now go for a walk or visit the garden of a friend or relative – as long as they are accompanied by a care worker or a “nominated” visitor – the strict rules on other visits have not changed.

Doug has also told managers at his Leonard Cheshire care home in Yorkshire that he will not be obeying the government’s “patronising, excessive and discriminatory” guidance and that he plans to ignore the rules.

Like other residents at the care home, he has followed the strict guidance on social distancing throughout the pandemic, but now the country is easing out of lockdown, and residents have been vaccinated, he believes the government guidance is “excessive” and a “cynical” response to the criticism of ministers’ failure to protect care homes early in the pandemic.

He told the Disability News Service (DNS): “I have reached the decision that I am just not going to comply. It feels patronising and excessive and puts such a restriction on people’s lives. It also feels open-ended, disproportionate and discriminatory, and stereotypes people in care homes. That’s why this is important to me.”

He added: “It’s our home, it’s our life. It seems bizarre that just because we are in a care home setting, we are treated in such a patronising way.”

You can read the full story in DNS

Description of cartoon for those using screen reading software

A large Leonard Cheshire care home dominates the landscape. Each window has bars behind which you can see disabled people peering out. There are marks on the ground in front of the building leading to a large hole out of which Doug Paulley is emerging. He is wearing a DAN cap and DPAC t-shirt and is holding aloft a large sign which reads ‘Free our people’. One of the people in a window is saying: ”Trust Doug to find a way out around the isolation rule!”

Crippen highlights the anger being expressed after watchdog appears to back away from inquiry into DWP deaths

The Equality and Human Rights Commission (EHRC) confirmed that it will be using its powers to address the “systemic barriers” facing disabled claimants in the benefits system. Sounds good …

However, it appears that even if it did carry this work out, the commission appears to be edging away from demands for it to hold a full inquiry into the links between the Department of Works and Pensions (DWP) and the deaths of countless benefit claimants over the last decade.

The commission refused to provide any details or offer further clarity about the work it will be doing on the barriers within the benefit system, despite requests from Disability News Service (DNS) and other campaigners.

Linda Burnip, co-founder of Disabled People Against Cuts, said: “This is typical of EHRC unfortunately and they seem to ignore even policies and behaviours of government departments that lead to the unnecessary deaths of disabled people. It really is time for EHRC to start doing their jobs effectively.”

Labour’s Debbie Abrahams has been trying to persuade the EHRC to hold an inquiry into deaths linked to DWP for the last two years, following years of campaigning on the issue in parliament.

She told DNS: “Whilst I support the EHRC’s broad objective – who wouldn’t? – it doesn’t address the issues I have raised with them about the deaths of disabled social security claimants.”

John McArdle, co-founder of Black Triangle, said the EHRC’s apparent decision to back away from an inquiry into the links between DWP and the deaths of claimants was a “disgrace”.

He said disabled activists had spent 11 years “campaigning for justice for the victims, families, friends and communities of those who have passed tragically – and completely avoidably – as a direct result of this government’s barbaric work capability assessment and personal independence payment disability assessment regimes. What we demand is a truly independent, judge-led public inquiry.”

Description of cartoon for those using screen reading software

Two people from the Equality and Human Rights Commission are standing in a field and wearing large blinkers on their heads. Out of their view are two large hills upon which are numerous white crosses. A sign in front says ‘benefit claimant deaths’. An empty box with blinkers printed upon it lies at their feet and one of them is holding a large piece of paper with EHRC enquiry printed upon it. One of them is also saying: “We see no deaths!”

Crippen asks why Liz Kendall ignored disabled-led social care plans in major speech

You may remember a blog I did about Keir Starmer’s election campaign and his promise to make fundamental reforms, including a right to independent living enshrined in law.

Well, as reported in Disability News service (DNS) this all seems to have conveniently gone away as the first major speech by Labour’s shadow social care minister Liz Kendall, ignored disabled-led proposals for fundamental reform. In her speech, Kendall made no reference to the idea of free social care, or any of the proposals made by the National Independent Living Support Service (NILSS).

The NILSS proposal, which was drawn up by Disabled People Against Cuts (DPAC) and the Reclaiming Our Futures Alliance (ROFA), would provide a universal right to independent living that was “enshrined in law”, and would introduce free social care in England, funded by national and progressive taxation.

Labour’s apparent back-tracking on Starmer’s support for NILSS comes amid mounting concern about the current government’s plans for social care reform, and the fact that no proposals were included in the recent Queen’s speech.

Speaking at the spring conference of the Association of Directors of Adult Social Services – which Labour had described as her first major speech on social care since becoming shadow minister – Kendall spoke repeatedly about the need for higher wages for care workers and more support for family carers.

She did call for more “power and control” for service-users and families and spoke about the need for more support to enable people to live in their own homes for longer, rather than in residential care.

But Kendall focused through her speech on older people’s care, even though working-age adults account for more than half (PDF) of local authority spending on social care.

Some of the grassroots groups behind the NILSS proposals, including ROFA and DPAC, are set to meet Kendall later this month. I’ll keep you posted on the outcome.

Description of cartoon for those using screen reading software

A couple of disabled people are confronting Keir Starmer with his broken promises regarding social care. One of them, a wheelchair user with pink hair  is holding up a placard that reads ‘labour promised independent living to be enshrined in law’. Opposite them stands Starmer and a colleague, both wearing identical grey suits and red ties. Starmer’s colleague is saying: “oh come on – nobody believes election promises!” Starmer is saying: “Naive or what?!” On the floor at their feet are a couple of torn up pieces of paper with ‘free social care’ and ‘broken promises’ printed on them.

Crippen hears about an exciting project run and controlled by young disabled people

An exciting new project, RIP:STARS which was run and controlled by young disabled people, has issued its findings on the quality of Education, Health and Care Plans (EHCPs) and whether they meet disabled children and young people’s rights.

RIP:STARS, which stands for ‘Research Into Plans: Skilled Team with Ambition, Rights and Strength’, was funded by the Disability Research on Independent Living and Learning (DRILL) programme and wanted to find out whether the EHCPs actually prepare disabled children and young people for independent living and help them achieve their dreams for the future. The project is also unique in as much that it is run and controlled solely by young disabled people from Coventry, who were trained in research techniques by Coventry University.

Speaking in the report, a member of the team said: “We have been involved in all of the stages of the research process, from coming up with the questions that were asked in the interviews and group discussions, to doing the fieldwork with professionals, carers and disabled young people. We have also looked at and analysed the information we collected and have developed recommendations from our research findings.

“We have also learned about the Social Model of Disability. This means not seeing young people just as a label such as autism or dyslexia, not treating everybody with that condition in the same way, and instead focusing on removing the barriers that restrict us as disabled young people. We have used the Social Model of Disability in our research. It was important for us to understand the social model to be able to do the research. We wish we had known about the social model when we were younger and are questioning why we were not told.”

As part of this project the Alliance For Inclusive Education (ALLFIE) have provided training sessions where the young researchers have learnt about their rights under the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). Before this project they had little information about their rights as young disabled people, but now they feel that they have the ammunition to fight back and make changes.

The full RIP:STARS report is available as a downloadable PDF.

Description of cartoon for those using screen reading software

A group of young disabled people are confronting a man in a dark grey suit who is holding a copy of the Rip Stars report. Above the young people is a large sign that says special school for special children. One of the youngsters is holding a copy of his EHCP. All of the young people are looking angry whereas the man is looking bemused. One of the youngsters is saying: “So how come we haven’t been taught about the social model of disability?!”

Crippen discovers that outsourcing companies have sent almost no safeguarding referrals to councils

The three companies used by the Department for Work and Pensions (DWP) to carry out benefit assessments have been faced with repeated criticisms over their links to deaths and serious harm caused to disabled benefit claimants.

The companies, Atos, Capita and Maximus, have made almost no attempts in the last year to alert local authorities to serious safeguarding concerns. In fact, they have contacted the councils just eight times in total between January 2020 and February 2021 with safeguarding concerns about the disabled people they were assessing, despite carrying out hundreds of thousands of assessments during that period.

The figures have come from disabled campaigner and former safeguarding expert Mike Owen, who collected them through freedom of information requests to every relevant local authority across England, Scotland and Wales. It is the third year that Owen has collated the statistics, and this year about 120 local authorities responded with figures.

Atos, who trade as Independent Assessment Services, and Capita have been continuing to carry out assessments for personal independence payment (PIP) and Maximus, who trade as the Centre for Health and Disability Assessments, has been conducting work capability assessments to test eligibility for out-of-work disability benefits. They have been paid more than £2.5 BILLION by the DWP since 2010 to carry out this work.

But between January 2020 and February 2021, Atos made just one safeguarding referral, Capita four and Maximus three to the local authorities that provided figures to Owen.

When approached by Disability News Service (DNS) Capita refused to comment or answer questions about the figures, and Atos refused to confirm the content of its staff safeguarding guidance. A Maximus spokesperson also refused to confirm the content of its staff safeguarding guidance and whether it followed DWPs internal guidance.

You’d think having been paid more than £2.5 BILLION they could be a little more articulate in their responses?!

Description of cartoon for those using screen reading software

A young white male is sat behind a desk in the office for benefit assessments. He is throwing darts at a notice board which has pictures of benefits claimants pinned onto it. Alongside of the desk is a waste bin full of rejected application forms. He is speaking to someone on his head set and is saying: “You’re feeling suicidal – what makes you think I give a toss?!”

Crippen hears visually impaired users complain after rail websites go grey scale for Prince Philip

For many visually impaired people who recently tried to access National Rail websites it was as if someone had decided to make the sites as inaccessible as they could.

Network Rail and National Rail websites had turned from colour to grey scale overnight rendering them completely useless to people with visual impairments. By the end of the day other train operators, including Cross Country and Northern rail, had also removed colour from their websites.

The reason for this? Well, it was someone’s bright idea to do this as a tribute to the Duke of Edinburgh who had died the week before. However, they soon realised that the gesture had backfired after disabled customers highlighted accessibility issues and complained they could no longer use the websites.

One Twitter user said: “National Rail have coloured their entire website grey to ‘mourn Prince Philip’, rendering the whole website completely useless to people with visual impairments. The UK has completely lost the plot.”

Robin Spinks, the innovation lead for the Royal National Institute of Blind People, added: “As someone who is registered severely sight impaired, good colour contrast on a website is incredibly important. A lack of this makes it difficult for me to read the content and causes headaches and eye strain. It leaves me feeling unwelcome as a customer”.
A Network Rail spokesperson said: “We temporarily made our website grey scale as a mark of respect following the death of HRH the Duke of Edinburgh. We’ve been made aware this has caused problems for people accessing the content so it’s now back to its usual look. We’re sorry it’s caused issues and we thank everyone for their feedback.”

I wonder where all of the money they claim to have spent on disability equality training and access really went?!

You can read more about this fiasco in the Guardian or Disability News service.

Description of cartoon for those using screen reading software

A young disabled man is standing in front of an automatic information machine in a train station. He is reaching out to a large button that has ‘press’ printed upon it. A large sign on the machine reads ‘rail network – disabled access service’. Half of the cartoon is in grey scale with half of the young man in grey scale and the rest of him and the station is in colour. A voice from the machine is saying: “Welcome to the colourless and hopeless world of the disabled!” The young man has a large explanation and question mark above his head.

Crippen discovers that the government ‘treats disabled people with contempt’ by handing £2.4 million to charities

The government has been accused of showing “contempt” and “indifference” towards disabled people, after announcing large grants to 13 disability charities but failing to offer a penny to organisations run and controlled by disabled people (DPOs).

Reported in Disability News Service (DNS) the Department of Health and Social Care (DHSC) announced this week that it was awarding £2.4 million to charities such as Mencap, Leonard Cheshire, Scope, the National Autistic Society, RNIB and RNID.

The money will fund services that provide advice and support for people affected by the pandemic. But none of the funding will go to DPOs, many of which have provided vital support to disabled people during the pandemic.

Joe Whittaker, a board member of The Alliance for Inclusive Education (ALLFIE), said the decision meant it was “business as usual” for the government, which was continuing to fund “the big business charities, rather than listening to the authentic voice of disabled people and their organisations”.

He said the government had yet again failed to engage with disabled people in recent months and continued to “treat disabled people with contempt” by funding “multi-million pound charities”.

He added that these charities were managed by non-disabled people on six-figure salaries “telling disabled people what’s good for them”, which “perpetuates practices that lock disabled people into cultures of dependency”.

This failure to listen to DPOs can only result in the same failed policies and systematic disability discrimination that is perpetuated by the current government. It also prevents society from gaining from the huge contributions of disabled people from around the UK.

NB: You’ll not be surprised to hear that 25 per cent of DPOs have closed over the last five years and many are on the brink of closing due to lack of financial support from local and national government.

You can read the full article in DNS.

Description of cartoon for those using screen reading software

Two disabled people are facing two charity representatives. One, a wheelchair user, is pointing at the large sacks of money that lay around the feet of the charity reps along with £20 and £10 notes. One of the charity reps, a female, is putting up a new sign that reads ‘charities Inc – doing it to the handicapped because we can’. The other charity rep, a male in a smart suit and tie, is saying to the disabled people: “What?!”